Geographic Parkinson's Survey


ALL INFORMATION CONTAINED HEREIN IS PROTECTED UNDER U.S. COPYRIGHT LAW AND MAY NOT BE REPRODUCED OR REDISTRIBUTED IN ANY WAY WITHOUT PRIOR CONSENT.

RESULTS WILL BECOME PUBLIC INFORMATION DISTRUBTED EXCLUSIVELY BY PARKINSON'S DATABASE COALITION.

 

 

 

 

This is a very brief and simple survey. As with our other surveys, there is no personally identifiable information requested and your responses are anonymous.

The purpose of this survey is to determine if there is any geographic and or age association based on general location for Parkinson's Disease. It has already been determined in some studies that ALS has a direct association with geographic location and verifiable clusters have been identified. There are also direct geographic associations with Alzheimer's disease. This could in fact be the case with Parkinson's. We don't know because the Government won't ask, so we'll do it for them. 

Other common neurological disorders have been included in the response. There is never too much information regarding incurable  illnesses.

Parkinson's Disease is considered a 'Non-Reportable" ailment even though it affects an unknown number of individuals in an increasingly broad age group. There are many variations of Parkinson's, including Parkinson's plus syndromes. There are also many different variations of idiopathic Parkinson's.

It is essential that we all work together and begin the process of elimination, we have to start somewhere and symptomatic treatment is quite frankly no longer acceptable. It's time to listen to Parkinson's patients and take action. We can do this together ad we can succeed but your participation is imperative.

The results will be openly published. We feel that this is our duty and our ultimate goal is to aid in finding the cause and the cure.

This survey can be completed by patients, caregivers or physicians. Please only one survey per patient.

There are 5 questions in this survey.

A note on privacy
This survey is anonymous.
The record of your survey responses does not contain any identifying information about you, unless a specific survey question explicitly asked for it. If you used an identifying token to access this survey, please rest assured that this token will not be stored together with your responses. It is managed in a separate database and will only be updated to indicate whether you did (or did not) complete this survey. There is no way of matching identification tokens with survey responses.